Reports & Research Studies

On this page you will find:   the results of public consultations, official reports and research studies.

Care

Carers UK

 

‘Caring Behind Closed Doors’   This report, by Carers UK, provides a real insight into the experience of being a carer during the COVID-19 pandemic over a 10 day period in April.

 

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Homing in on Free Personal Care    This booklet from Independent Age discusses the issues relating to free personal care. (March 2020).

Couple caring for each other 2State of Caring Report 2019 by Age UK

This analysis shows that people over 80 years old provide 23 million hours of unpaid care a week which adds up to 1.2 billion hours of care a year, saving the health and care system a massive £23 billion a year. It also highlights the personal cost to the carers who have no respite from their duties.

 

 

Age UKCare deserts: the impact of a dysfunctional market in adult social care provision by Age UK 2019

This report provides an overview of how social care services function in England and the demographic and financial challenges facing the system. It also identifies geographical differences in the provision of care throughout the country and the implications of dysfunction in the social care market on informal carers.

 

 

 

State of Caring 2018State of Caring report 2018  by Carers UKCarers UK carries out an annual survey of carers to understand the state of caring in the UK each year. This year a total of 7,397 people shared their experience of what it’s like to be a carer and is the largest State of Caring survey carried out by Carers UK to date.

 

 

building-bridges-breaking-barriersBuilding Bridges, Breaking Barriers (Integrated Care for Older People) This CQC report sets out their findings into how health and social care services work together to deliver care for older people that is integrated. It follows the fieldwork carried out in eight areas. The report highlights many instances of good practice where those providing and commissioning health and social care share information and co-ordinate services for older people. It also details the barriers to delivering joined up care found on site visits and concludes with recommendations for health and social care leaders. The review has led CQC to develop new methods of assessing and understanding integrated care and CQC hope this report will lead to better co-ordination of care for older people.

 

Cover of the State of Care 2015 reportThe state of health and social care in England 2014/15

‘England’s health and social care system is under pressure. Changing care needs and tough financial demands have contributed to an environment where higher quality is hard won’.  This report by the Care Quality Commission illustrates how its inspections can contribute to raising standards of care.  The 2015/16 report is also available.

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 The Deprivation of Liberty Standards  The state of health and social care in England 2015/16:

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Social Care for Older People This new report, published by The Kings Fund and the Nuffield Trust, looks at the current state of social care services for older people in England, through a combination of national data and interviews with local authorities, NHS and private providers, Healthwatch and other groups. It considers the impact of cuts in local authority spending on social care providers and on older people, their families and carers.

building-bridges-breaking-barriersBuilding Bridges, Breaking Barriers (Integrated Care for Older People) This CQC report sets out their findings into how health and social care services work together to deliver care for older people that is integrated. It follows the fieldwork carried out in eight areas. The report highlights many instances of good practice where those providing and commissioning health and social care share information and co-ordinate services for older people. It also details the barriers to delivering joined up care found on site visits and concludes with recommendations for health and social care leaders. The review has led CQC to develop new methods of assessing and understanding integrated care and CQC hope this report will lead to better co-ordination of care for older people.

cracks-in-the-pathway

Cracks in the pathway  During 2013 and 2014, the CQC carried out a thematic review of the care people living with dementia receive as they moved between care homes and acute hospitals.

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CQC Adult in-patient survey 2015 This report, published in 2016, presents the analysis of the results of a survey looking at the experiences of adult patients in hospital.

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Better care in my hands:  A review of how people are involved in their care This CQC report describes how well people are involved in their own care and what good involvement looks like.

 

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Harnessing social action to help older people – report from Nuffield Trust

 

 

 

Data Security

healthwatch-2Are people happy to share their patient data? A report by Healthwatch in response to the Data Guardian’s recommendations for patient data security.

data-security-consent-and-opt-outs

Review of Data Security, Consent and Opt-out, produced by the National Data Guardian Dame Fiona Caldicott, was commissioned by the Department of Health and received evidence from Healthwatch England and local Healthwatch about the public’s views on consent and data security. This report sets out recommendations for how patient’s health and care information should be used within the NHS.

healthwatch-2What  do people think about the Proposed Patient Data Standards? The full report by Healthwatch responding to the Data Guardian’s Review of Data Security, Consent and Opt-Outs’.

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Safe data, safe care  This review looks at whether personal health and care information is being used safely and is appropriately protected in the NHS.

 

 

Health

 

British Psychological Society

 

Supporting Older People in isolation due to the Coronavirus A compassionate response to Covid-19

 

 

Healthwatch 2Healthwatc Ah North Yorkshire report: How refugees are hitting a language barrier with healthcare. GPs, dentists, pharmacists and hospitals in North Yorkshire are being urged to do more to help refugees break through the language barrier and access key health services. healthwatchnorthyorkshire.co.uk

 

 

CQCMonitoring the Mental Health Act in 2018/19 report   by the Care Quality Commission (CQC) shows there’s been an improvement in the number of people being given information about their rights and being offered the support of an Independent Mental Health Advocate (IMHA). However, services need to do more to make sure that they’re complying with their human rights duties. 26.2.2020

Kings FundHealth matters: physical activity – prevention and management of long-term conditions (2020)

Guidance from the King’s Fund which highlights the benefits of activity and a professional resource for local authorities and healthcare professionals on physical activity for the prevention and management of long-term conditions.

CQCSurvey of  In-patients 2018  This national survey conducted by the Care Quaity Commission (CQC) shows some improvements in people’s hospital experiences but highlights concerns around discharge and inequalities for those with mental health conditions

ThThe state of care in independent online primary health services cover imagee state of care in independent acute hospitals     Independent acute hospitals provide a range of services including surgery, diagnostics and medical care. The state of care in independent acute hospitals presents findings from the CQC inspection of 206 independent hospitals in England. The expert led, specialist inspections focused on what matters most to people using services – whether they’re safe, caring, effective, responsive and well-led. We rated performance as ‘outstanding’, ‘good’, ‘requires improvement’ and ‘inadequate’ to help people make informed choices about their healthcare.

 

Grandparents with grandson enjoying the sunny spring day.Growing older in the UK – a report by the British Medical Association - a series of expert-authored briefing papers on ageing and health. 2016 This report focuses on how the health and life chances of older people of this and future generations are harmed by holes in the safety net of health, social and other welfare services. Across the report’s six chapters it identifies how older people’s health and that of their carers is affected from experiences throughout their lives as far back as childhood. The report also pinpoints established links between patients’ social circumstances that influence the quality of their lives significantly.

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Dignity and nutrition for older people
Throughout summer 2012, the CQC carried out an inspection programme that looked at the care provided to older people in care homes and NHS hospitals. The programme focused on whether they are treated with respect and dignity and get the food and drink that meets their needs.

 

age-ukHidden in plain sight - The unmet mental health needs of older people  According to a new Age UK report, the current availability of mental health services does not meet the increasingly high demand from our ageing population. The report revealed that:

Currently 3 million people in the UK over the age of 60 are living with depression. This figure is set to rise to 4.3 million in the next 15 years due to the growing number of older people in our society

The NHS is not providing those in later life with mental health problems with sufficient treatment options, such as talking therapies and integrated care plans.

Society

Centre for Ageing Better rev‘Home and dry: The need for decent homes in later life

A report by the Centre for Ageing Better about the effects of housing on older people’s quality of life.

agenda-joing-the-dots‘Joining the Dots’   Agenda has published a report that combines data on women’s experiences of poverty, mental health, life circumstances, and abuse and violence, to paint a picture of how different forms of inequality combine in the lives of women in poverty in England.

Poverty report 2019 rev UK Poverty 2019/20 from Joseph Rowntree Foundation 

‘This is the 2019/20 edition of JRF’s annual report on the nature and scale of poverty across the UK and how it affects people who are caught in its grip’.  (JRF)

 

Travel

Buses in Crisis

 

Buses in Crisis 2018  This report by the Campaign for Better Transport highlights the huge reduction in funding for buses over the past 8 years.Information about buses and withdrawn routes was collected by contacting all 82 local transport authorities in England as well as the combined authorities responsible for public transport within large urban areas, Statistics for England and Wales are provided.